tag:blogger.com,1999:blog-8613527581486082866.post616687465550900222..comments2023-06-24T06:26:30.548-04:00Comments on DEIRDRE MEDINA's DIARY: A LITTLE MAGE in the FAMILY: ONGOING HOPEViernahttp://www.blogger.com/profile/03344026446892276772noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8613527581486082866.post-13304318238058684792008-01-15T12:41:00.000-04:002008-01-15T12:41:00.000-04:00Hey Vivian -- I hear ya! Tough times and very tir...Hey Vivian -- I hear ya! Tough times and very tired - we know how you feel. I am sorry you are going through all of this. I know it's been mentioned, but have you contacted Dr. Schroth as well? We are BIG fans of Dr. Swoboda too, but sometime PICU Dr's will listen to a Pulmonologist that deals with SMA kids regularly. I hear you contacted Dr. Bach and he won't call the hospital - so that's why I am suggesting Dr. Schroth. She may be willing to call down there, maybe.<BR/><BR/>Hang in there! There are people that do the right things for kids - sometimes you just have to fight, fight, fight to find them. :/<BR/><BR/>I know Brad and Shannon have given you TONS of good info, but if you need something from me don't hesitate to ask: nathan@hopeforemily.com.<BR/><BR/>PeaceNatehttps://www.blogger.com/profile/07015631742777447805noreply@blogger.com