DEIRDRE MEDINA's DIARY: A LITTLE MAGE in the FAMILY

In loving memory of a 5 year old diva with Spinal Muscular Atrophy Type 1 who changed our lives forever

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Tuesday, June 28, 2016

OUR DIVA IN SUMMER





Posted by Vierna at 2:16 PM No comments:
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IN LOVING MEMORY

IN LOVING MEMORY
Deirdre Valeria Medina Aug 2007-Oct 2012

HELLO & WELCOME!

HELLO & WELCOME!
Diagnosed with SMA type 1 in January 2008. SMA is a GENETIC, fatal illness, the # 1 killer of babies.

VISIT the OFFICIAL HOME of the DEEVA

VISIT the OFFICIAL HOME of the DEEVA
Videos, Pictures, Information & More

My 14th Birthday MOANA

My 14th Birthday MOANA
A little pathfinder

My 13th Birthday COCO

My 13th Birthday COCO
Remember Me

My 12th B-Day LITTLE PRINCE

My 12th B-Day LITTLE PRINCE
Look into the stars when you are sad, you will find me there

My 11th B-Day BELLE

My 11th B-Day BELLE
Books... Better than images

My 10th B-Day TARZAN

My 10th B-Day TARZAN
You're In My Heart Always

My 9th B-Day JASMINE

My 9th B-Day JASMINE
A Whole New World

My 8th B-Day SIMBA

My 8th B-Day SIMBA
Remember Who You Are

My 7th B-Day RAPUNZEL

My 7th B-Day RAPUNZEL
And at Last I see The Light

My 6th B-Day MULAN

My 6th B-Day MULAN
The flower that blooms in adversity is the loveliest

OCTOBER 2012

OCTOBER 2012
Flying high to HEAVEN

My 5th B-Day POCAHONTAS

My 5th B-Day POCAHONTAS
What's around the river bend?

AUGUST 2012

AUGUST 2012

My 4th B-DAY PIRATE

My 4th B-DAY PIRATE
Wheeeeeere's my hairbrush?

JULY 2011

JULY 2011
At Camp Jr

MARCH 2011

MARCH 2011

MY 3rd B-DAY KAILAN

MY 3rd B-DAY KAILAN
Nihao, Nihao everybody!

MY 2ND B-DAY WONDERPETS

MY 2ND B-DAY WONDERPETS
This is sewious! What's gonna work? Teamwork!

MY 1ST B-DAY ARIEL

MY 1ST B-DAY ARIEL
Part of your world? Always, my little mermaid!

NJ PICU 2008

NJ PICU 2008
April

SAN JUAN PICU 2008

SAN JUAN PICU 2008
March

3 MONTHS

3 MONTHS
A month before being diagnosed with SMA

DIRECT DONATIONS

  • Send direct donations to our PAYPAL account: drex_tm@yahoo.com

FAMILY BLOGS

  • KALISTO MEDINA
    MAY 2018 -
    6 years ago
  • Me, My self, My Own: My Life
    COMEBACK - It seems that each time that I write in this blog a year has passed by... That is not intentional, and my love for writing has not faded... Too many change...
    10 years ago
  • Deedee's Gallery
    HANGING BUTTERFLY -
    12 years ago
  • Deedee's Crafts
    Grass House - Little Grass House Instructions 1. To create a good growing surface, rinse the new sponges by holding them under running water and squeezing ...
    13 years ago
  • DEEDEEs LEARNING
    The 15 Stations of the Cross -
    13 years ago
  • Deedee's Assistive Technology Stuff
    ActivCycle for PT - Deirdre using her ActivCycle. So far, this has been a cheap solution until we can actually get the Motomed system. There is a way to make it go slower i...
    13 years ago
  • DEEDEE'S GAMES
    iBoards for EI -
    13 years ago
  • DEIRDRE MEDINA
    Magia Por Siempre -
    13 years ago

FAMILY SITES

  • DEIRDRE MEDINA Official Site
  • VIVIAN WebSite
  • Vivian in Facebook
  • Vivian in MySpace
  • Vivian's Fotolog
  • Vivian's Katabolic Designs
  • MARK WebSite
  • Mark in Facebook
  • Mark in MySpace
  • Mark's Fotolog

About MOMMY

My photo
Vierna
A dream to some, but a NIGHTMARE to others! A thirtysomething gal with some eclectic interests… among them the Quest to fight the SMA monster and balancing dreams and reality.
View my complete profile

PUERTO RICO

  • Mayaguez, my hometown
  • San Germán, my birthplace
  • San Germán: Porta Coeli
  • San Germán: Porta Del Sol
  • Mayaguez: Porta Del Sol
  • Mayaguez: The Zoo
  • Mayaguez: RUM
  • Cabo Rojo: Lighthouse
  • Cabo Rojo: El Combate Beach
  • Camuy: Caverns
  • Arecibo Observatory
  • Eye Tour: Puerto Rico Video Guide

SMA FRIENDS

  • Shira
  • Emily
  • Ally
  • Stella
  • Ethan
  • Mary
  • Vivianna
  • Charlie
  • Garrison Murph
  • Allyson
  • Angel Cornelius
  • Skylar's Journeys (3yrs)
  • Aaron Phelps
  • Prince Aiden's Kingdom
  • Kyle's Website
  • Brett Wilson's Blog
  • Miracle for Madison
  • Emma Hope World
  • MJ, the SMA Queen (21yrs)
  • Independence for Amanda (24yrs)
  • OurThreeGirls: Taylor
  • Jacqueline's Dare
  • O'Neill Boys: Casey & Colin Blog
  • Payton's Pals
  • Blankets for SMA
  • Special Education Law Blog Blog

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      • OUR DIVA IN SUMMER
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