In loving memory of a 5 year old diva with Spinal Muscular Atrophy Type 1 who changed our lives forever
Sunday, August 16, 2026
Wednesday, December 21, 2022
Something different for Xmas
This year we are back in the SMA Xmas card exchange. Checking out Xmas cards it occur to me that I have some stamps I could use to make my own.
I started collecting Gorjuss girls stamps because they remind me of Deedee. I always love them with long raven hair. I alwayssaw Deedee's demeanor in her eyes, as pictures show since her face mask often covered her mouth. Gorjuss girls have no mouth, so they reflect an emotion based on context.
This year Deedee would have had her Quinceanero... It's bittersweet. I miss her everyday.
I told Kali about the idea and she was very excited about it. Since I'm having eye issues, she helped with this project.
20 families will get a little piece of our hearts this year. I hope they can appreciate the hours and the love that Deedee's sis place on them, as well as my own.
Any chance to do something to keep Deedee present in our lives is worth it. Thinking of her makes our heart smile.
Monday, October 24, 2022
10 Years
It's living in Shadow without you around. But we have made the best of it, trying our best to live a live worthy of you. Because you still walk with us, gazing down from Heaving while you run and while you fly and while you walk in beauty.
A few more blinks, love, just a few more blinks. We will come home. And then forever.
In the meantime, your sister loves you. Your father loves you. And I love you. Our adventures always include you. And during the hard times, your light guides us to safety.
Keep shining from so far, your light always touch us.
A smile. A kiss.
Forever.
-Mom-
Thursday, August 18, 2022
15th Birthday!!!
Deirdre Medina A little girl born in a little island, in the magical historical town of San German back in 2007. Who would have known that she would use her craft to send us to a path of adventures, boldly daring and defying life in every breath she took. In the 5 years she was here on Earth she touched so many lives! Miss Deedee... Sassy, bold, smart, loved sharks and Wonderpets, and loved everyone who showed up in her life. And her memory lives on through our love.
We celebrate you, Deedee, as the spoonfull of sugar that you were in our lives... Just like Mary Poppins you arrived under stormy winds... And you left just when the wind changed. But you left us precious lessons that changed us... You taught us how to fly a kite and why we should feed the birds.
Love you Deedee. Always.
Our dear quinceanera...
We walk with you in dreams. Until we meet again... Hugs and kisses, love.
Sunday, April 17, 2022
HAPPY EASTER 2022
Oh my! I just came to reminisce, and realized I had not posted anything since Deedee's birthday in 2020. For the record, we did celebrate (we always do) but 2021 was quite eventful and went away in a blink. The last thing I was paying attention to was posting anything in my blogs.
2021 was brutal. Auntie Gladys passed away in June 05, 2021 after falling in the hospital December 2020 and facing Alzeheimer... I travelled to Puerto Rico to take care of her at the hospital. Against all odds I made her well enough to be taken home. I was there until mid February, when I decided to bring her with us so I could keep on working and taking care of her. She got better and then in May she started a decline that ended in June 5th. She passed away with a smile in her face.
During the first week of August we went to Puerto Rico to take my aunt's ashes to her tomb.
Today we celebrate Easter. Deedee used to love this date. I am glad I came here to check on her pictures. I am sorry that I have been away for a bit, but life has taken us back to the future and beyond.
10-4
Monday, August 17, 2020
WE HAVE A TEENAGER! HAPPY 13th BDAY DEEDEE!
You must miss the marathon of taking you to the Museum Camp on Summers, visiting sharks at the Aquarium, being greeted by giraffes at the zoo... grasping the might of dinosaurs or just the lovely starry night at a campsite in the mountains... You must miss our adventures filling up the pool in our living room so you could move like a mermaid... You must miss our road trips, wary of the wheelchair when it was kept in the back of our small car and we feared potholes... You must miss meeting Kali and having her next to you while watching your favorite cartoons... Also having her during your classes as she turned out to be a very special assistant in your at home classes...
You must miss how we celebrated everything! there was always an excuse to dress up in costumes and let imagination run wild! There were pop-up books that brought stories to life! And exercise with your running device... And bright hair colors because your "divaliciousness" was always spot on! Yes, you must miss being with me for so many hours while I beaded and braided your hair... when you held the little beads like precious stones while I slowly went on, strand by strand... You must miss sleepovers listening to the Spanish songs about the little ship that couldn’t sail, the curtains in the room, Mambru goes to war and the cat that was drowning in a well… Everyone wonders why Spanish kid songs are so tragic!
So many things you must miss… because I know I miss doing them with you. I remember you, your dreams, your passions… You wanted to be an animation artist. You looked forward to meeting Pocahontas in Disney. You looked forward to more campouts in the mountains… and to Trunk & Treating with new friends… and to doing therapy with horses with your very special friend… and visiting the sea again, but in your homeland Puerto Rico… and being with your family, all of it. The world was at your fingertips… You would dream it and we would make the wings so you would fly. God granted you real wings.
We miss your voice, little one… your voice that no matter what we always heard. And your sister misses growing up with you… looking up to you…
I know for you it will be a blink of a wait, waiting for us to be together again… Close your eyes and make your wish, baby girl… We will soon be there forever. In the meantime… Enjoy your family in Heaven… and visit often your family on Earth… And catch the sweet kisses we blow for you every night before going to sleep.
Loving you always. Remembering you always.
Happy 13th birthday, dear Deirdre Valeria... May you watch over us and smile. We”ll be there soon enough, love. Until then, we will be, for you.
Keep shining on us!
Mommy, Daddy and Sis
































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