A new year arrived... We keep on trying to make sense on the unthinkable, trying to smile and count our blessings in spite of our pain. Deedee had the kind of colors that could only bring inspiration and belief. Life without her in our arms just doesn't feel right. Breathing just doesn't seem right... We know that as an angel she is free of so many things, she can do everything now! But we are only human, after all... and knowing is not the same as feeling... I just feel I want to hug my baby girl, and nothing in this world can make that happen. I miss you, my little diva... I love you. Always.
In loving memory of a 5 year old diva with Spinal Muscular Atrophy Type 1 who changed our lives forever
Tuesday, January 6, 2015
Wednesday, October 22, 2014
2 YEARS
It has been two years since you earned your wings. Much has changed, not to the better. You are not with us... That little fact will forever tarnish anything that could be truly awesome. We miss you so much... We don't look for answers as there is nothing that can explain why all happened... And there's not enough words to explain how we feel... how I feel...
The show must go on, and we must carry on. Must. There is actually no true desire in that word. It is all duty, responsibilities... life. We must carry on. Let the face show a smile, let the heart and the soul be broken in pieces. It is how we live these days... Life without you is just not... liveable.
We miss every little detail about you, sweet warrior princess. We love you as strongly as the first day we got to know about you... We love you and we always will.
Know that you are missed... loved... cared for... Inspire us from Heaven. Give us guidance. Give us peace.
Not enough words, my diva... Not enough time...
Mommy
The show must go on, and we must carry on. Must. There is actually no true desire in that word. It is all duty, responsibilities... life. We must carry on. Let the face show a smile, let the heart and the soul be broken in pieces. It is how we live these days... Life without you is just not... liveable.
We miss every little detail about you, sweet warrior princess. We love you as strongly as the first day we got to know about you... We love you and we always will.
Know that you are missed... loved... cared for... Inspire us from Heaven. Give us guidance. Give us peace.
Not enough words, my diva... Not enough time...
Mommy
Monday, September 29, 2014
Bright Star
Here we are.
At the end of September, here I stand... I look up into the sky, to find the brightest star so I find guidance. And there she is, my amazing bright star... shining on us... shining on me. The pain fills me with tears of anger, with unanswered questions, with endless rage. Yet, my dear angel shines on me... trying her best to soothe my spirit, to patch up the bleeding wounds. Her smile, my smile. Her existence my existence. Her silence, my silence... I don't understand why she had to go. I don't understand why, after all our efforts, all of our love was not enough to make her stay. I don't understand if God is just and merciful, why he let this happen... all of this. I don't understand why life makes it so hard for the good people to win but allows evil to prevail unpunished. I don't understand... So many things I don't understand...
My life was taken away the day my little warrior princess exhaled a last breath. She gave me sound purpose, and I gave it all to find a way to make her life whole. I gave it all. I want to honor her memory and do so many meaningful things... yet I am stuck in a mundane life that serves the only purpose of keeping a roof and paying bills. Stuck with the feeling that although it was not my fault, it will always be my fault. Nothing has the same luster. Nothing has the same value or feel. Everything is changed so deeply, beyond explanations... And yet I must stand, and smile, and be an amazing crowd pleaser. Who cares if my heart is breaking every step of the way...
End of September... One year, eleven months and seven days that we walk without holding your hand, or hearing your voice, or gaze into your lovely eyes... Too much time away from real Heaven. Loving you so much, missing you so much... Impatiently waiting until the day I can hold you in my arms again, forever.
Sunday, August 24, 2014
Visiting Our Diva!
Here I am, Deedee, finally... after a year and a half of trying to come visit you... I am happy that I made it, and that I made your resting place a bit more happier. I really wanted to find flowers that resembled you... Sunflowers will always do that, my little Pocahontas...
I was not alone. Your Godmother Maria and your Godfather Steve were there as well... It was thanks to Steve that I reached my final destination. He knew how important it was to go visit you at your resting place... He knew it drives me crazy not being able to go there with the frequency that my heart demands... We all felt a little happiness in our hearts... You.
Your grandmother Edna was there as well. I also know that during the year grandma Millie and your half-sis Amanda, and Alex have visited you. Aunt Gladys keeps you in her daily prayers. It is not too many people, but is people that remember you with love and that did a lot for you while you were alive...
And then, you have so many families that you have touched over the years... Old friends and new friends that reminisce on you, on your life... and that wish you light and happiness and peace. You are blessed with people from all over the world that love you... that care enough to keep you in their prayers.
Thanks to this trip I was able to see Willie, the man that raised me as a daughter and that is always there for me against all odds. I'm always sad about not being near to help him now in his Golden years...
And same goes for Gladys... who is always alone in that house... But I know you see all this, and you visit her regularly, making sure that she survives... You are our guardian angel, and you also guard her. Thank you so much, Dee... for all the light that you bring into our family.
Pictures here, pictures there... Pictures lost, pictures found... Memories that remain alive and burn within our hearts... Your story matters, your memory matters, and in our journey trough life it is you who shows us the way. You are a tool for God's big master plan... And we are obliged to finish up what you began. You live on through us.
And while I travelled to visit you, Daddy and Sis went to the second special place that we have for you... Give Kids The World. They saw your star, your constellation... They reminisce on you, and on the joy that you are for us all. We celebrated your birthday at the same time... And we felt the happiness in you.
Thank you, Deedee, for so many blessings that you bring into our lives... Thank you for sending so many signals and messages this week, letting us know that you are well... that you smile at us and with us. Thank you for being the background music in the movie of the story of our lives... It is you who set the tone, and who soothe our spirits.
Much love... Every day... Always & forever.
Mom & Dad & Sis
Thursday, August 14, 2014
Deedee's 7th Birthday!
HAPPY 7TH BIRTHDAY, DEEDEE
On the 17th of August we celebrate the most important day in our life: Your birth! You changed our lives forever, for the better. This year we celebrate you with the lights from Tangled. We know that you are free, and that you are in a better place doing all things that you could not do here on Earth...
Still, we send out to you these bright lanterns as they resemble the warm loving thoughts we keep for you... and the deep desire of having you with us...
It is a bit opposite... it is us who must find the path towards you... but be certain that soon enough we will all be together. And then we will all be home.
I had the privilege of getting to know you... You had many dreams. You had a beauty that the world was not ready for... So young, yet so wise. I am happy you no longer need machines to do anything for you, and that you no longer need anyone's understanding as you are beyond those terms... You were ahead of your time. It must have been frustrating... to say the least... yet you never stopped believing and dreaming. Your thirst for life went on to the end and beyond.
No more shells... You are unleashed. We don't understand but we know that you still have much to do... Your work is not done. You are still to do much through us.
Keep on bringing meaning to our lives... You are our greatest love, our greatest inspiration.
Keep on being our shining star, we see the light... through you.
We remember you...
We miss you.
All those days watching from the windows
All those years outside looking in
All that time never even knowing
Just how blind I've been
Now I'm here blinking in the starlight
Now I'm here suddenly I see
Standing here it's all so clear
I'm where I'm meant to be
And at last I see the light
And it's like the fog has lifted
And at last I see the light
And it's like the sky is new
And it's warm and real and bright
And the world has somehow shifted
All at once everything looks different
Now that I see you
Happy birthday, my sweet little diva, our guardian angel. May we have courage to make your dreams come true.
Love always,
Mommy
Wednesday, August 13, 2014
On Flight
Hello my beloved angel diva,
Work takes most of the day, and sleep completes the circle... yet there is not a second that passes by without me thinking of you. What if you have stayed with us for a little while... What if we could have completed some of the immediate plans... What if some people have stayed, and other had chosen to be actually present in your life... What if things had not disappointed you and frustrated you as they did... What a long list of what ifs, my little one! But all are just movies that play in the background, movies that make believe so many different paths for you, or about you... All those movies play at intervals, choosing to run and stop and run again... What if... Eternal what ifs that will forever play, as we are forever haunted by the irreversible truth of your absence.
It has been 19 months and 22 days without your heart beating, or your warm fingers insisting on triggering your favorite Kai-lan doll. It has been just too long since listening to your fussy complaints whenever you woke up scared through the night and I heard... and ran to your room to get in your bed, and caress your hair until you would finally go back to sleep. It has been just too long since I last diva-fied your nails with your favorite colors: Bright pink and green stripes. It has been just too long since listening to those songs that drove Daddy crazy... the song of the little ship that could not sail... Mambru coming back from war... the cat stuck at the end of the well... Each time we read or watch the tales that you loved so much, like the Very Hungry Caterpillar, or Up in my balloon, or Them Bones... it all brings back so many memories we hold dear, and at the same time a deep pain that pierces our chest over and over... And each time we pick up a book of The Wonder Pets... what can I tell you that you don't already know, Dee... Wonder Pets are just you. Every little thing has a piece of you, and the good part is that it keeps you alive with us... yet the bad thing is that it also screams your absence...
Time has been the most treacherous creature. Time has moved along, faster than we thought... People say time would make things better, would make it all fall in place. Well, apparently those people have never lost anyone dear... because the more time that passes by, the more I miss you and the more we need you, and the more we have to realize that you are gone and the whole world seems to be dulled from that fact... What can we expect? For those who did not know you, you had to go. And for those that knew you... it was your time. For those that love you, it was just too fast, it is just too unfair, it is all just too much. We don't understand why people who are no good to their kids still have them, how come the ones that care for their kids have to go through so many ordeals... We don't understand why you had to go, when at that precise moment in life things were placed at your feet... and life had so many door opening for you... We don't understand why it all ended as it did... and how come the harshest storm is not over yet... as missing you is a constant blizzard that buries us in pain.
What ifs are just those wishes that can't be, and the true story is a beautiful ballad that keeps playing as we stare into your never-ending gaze... Deedee, how we miss you! How can we go on through life without sharing it all with you... The years with you were in fact the most wonderful years of our life, and all we learned from you is priceless. We knew heaven each time you opened your eyes and smiled at us... we knew hell each time we landed in the hospital and battled for you... The intense living is something that changed us... And it seems no one else understands just how deep it goes... what truly matters to us... and how we suffer in silence. We try to smile for you, Dee, as it is what you would want... You smiled though your adversity. You always looked upon us at the end of all trials and smiled making every effort worth it... You showed us how to go through life, how to battle for life, how to enjoy what really matters. Family comes first. Your beauty intoxicated us, and it keeps on inspiring us... My love, we know what you want from us, and we are trying so hard to accomplish it...
We place one foot in front of the other... We smile for we believe in the promise of a tomorrow where we will all be united... We keep swimming because we have no other choice. Forever being a misfit in a land where love and friendship is barren, and where people just survive at the expense of their souls. We are misfits, deeply changed by true love, forever bleeding... You know this is true, Dee... We look for a North that is a dream, and we go through life trying to live up to what you inspired on us. Every little breath is a deep struggle... moving along... finding the colors... I can only hope that your silent voice will keep guiding us towards the right path, and that the little projects can come true... because of you. I have not forgotten... and I always keep my promises.
Please tickle us with your wings, take away the sadness... We love you so, our little star... Forever missing you... I hope you smile upon the little journey to see you. I look forward to it... Don't ever think that such an important day will not be acknowledge in big! Until then... In dreams I walk with you.
Love, Mommy.
Sunday, May 25, 2014
My Pocahontas
One year and 7 months... Always thinking of you and missing you so much! You made life better in so many ways... Your eyes showed us wisdom and joy...
This week was Disney's D24 special event... "Rock your Disney side!". Well... You rocked your Disney side in every way, so it is fitting that here I show your Disney side. Oh, I am quite surrounded by you everyday, in everything that I do. Bittersweet... although you will always make it all sweeter.
Your favorite was Pocahontas... I know. You channeled the independent free spirit quite well. You were young, but demonstrated many times just how much of a sage you were...
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