Monday, August 17, 2020






Celebrating you is the sweetest task each year... And the only task that also rips my heart in pieces. 

But you know what? I love this pain because it means I love you that much. 

Living life without your sunshine is simply not the same... You are my sunshine. God had to take you away because you needed it... I know... You went through so much, good and bad... Too early you learned the disappointments of people that you love so much who say they will be around, but they don't... Too early your little heart experienced life... You lived in a world of beauty, vibrant, filled with hopes and songs... And you lived in a world of humans where obstacles were the order of the day simply because they could not go beyond the physique and its limitations... You had to go, because even if it flipped our lives in the worst way, it meant that you will no longer need a ventilator, a wheelchair, physical therapy, hospital stays, cough assist, suctions and percussion... Of course, you must miss your movies, your Wonder Pets, your Pocahontas and Mulan, your teacher Mr. farina and your nurses Mashaela, Peronette, Marie... 

You must miss the marathon of taking you to the Museum Camp on Summers, visiting sharks at the Aquarium, being greeted by giraffes at the zoo... grasping the might of dinosaurs or just the lovely starry night at a campsite in the mountains... You must miss our adventures filling up the pool in our living room so you could move like a mermaid... You must miss our road trips, wary of the wheelchair when it was kept in the back of our small car and we feared potholes... You must miss meeting Kali and having her next to you while watching your favorite cartoons... Also having her during your classes as she turned out to be a very special assistant in your at home classes... 

You must miss how we celebrated everything! there was always an excuse to dress up in costumes and let imagination run wild! There were pop-up books that brought stories to life! And exercise with your running device... And bright hair colors because your "divaliciousness" was always spot on! Yes, you must miss being with me for so many hours while I beaded and braided your hair... when you held the little beads like precious stones while I slowly went on, strand by strand... You must miss sleepovers listening to the Spanish songs about the little ship that couldn’t sail, the curtains in the room, Mambru goes to war and the cat that was drowning in a well… Everyone wonders why Spanish kid songs are so tragic!

So many things you must miss… because I know I miss doing them with you. I remember you, your dreams, your passions… You wanted to be an animation artist. You looked forward to meeting Pocahontas in Disney. You looked forward to more campouts in the mountains… and to Trunk & Treating with new friends… and to doing therapy with horses with your very special friend… and visiting the sea again, but in your homeland Puerto Rico… and being with your family, all of it. The world was at your fingertips… You would dream it and we would make the wings so you would fly. God granted you real wings.

We miss your voice, little one… your voice that no matter what we always heard. And your sister misses growing up with you… looking up to you…

I know for you it will be a blink of a wait, waiting for us to be together again… Close your eyes and make your wish, baby girl… We will soon be there forever. In the meantime… Enjoy your family in Heaven… and visit often your family on Earth… And catch the sweet kisses we blow for you every night before going to sleep.

Loving you always. Remembering you always.

Happy 13th birthday, dear Deirdre Valeria... May you watch over us and smile. We”ll be there soon enough, love. Until then, we will be, for you.

Keep shining on us!

Mommy, Daddy and Sis