Today we had our big date with Dr.Bach. It was so exciting to have all my entourage around me, going out of the house and facing daylight! I saw my old friends Enrique, Loui and Bach. Mommy and Daddy asked some questions about me (they had a list, and it all was addressed). TherapistEllen was there with us too, and when asked if I could sit the doctor just asked the paramedics to lift up the bed to seating position. Oh, I showed everyone what I can do when I’m in a good mood. My stats stayed high, and Ellen was so excited about it! I got a prescription so a cardiologist can check up my heart rate, but besides that everything is just fine. My lungs are ok, the doctor was happy to hear I am following the Amino acid Diet… So everything I’ve been doing is exactly what I should stay doing. Mommy got a green light to try carnitine again, and to find when to get my flu shot so I’m more protected at home. The team that provide transport today was very nice people. Everything was fast, so in a blink I was back home watching Little Mermaid 3.
Mommy started this month being sick. The weather is really cold (at least for us). It’s funny, mommy went to a doctor’s appointment on Friday and the trip (cold wind) put her in bed for almost 4 days! He also started her fall session at the online university… It’s been a tiresome busy week for her. Mommy and Daddy have also been filling up much paperwork, trying to figure out if we can find another home. We cannot keep living where we are right now, rent is too high, and it does not include utilities… They are trying everything they can to comply with requisites and with finding something that they can afford and that is safe for me.
Mommy contacted the CP Loaning Center so I will soon get a switch and an adapted toy to try it… That will be fun! I will also begin having a nighttime nurse soon, so I can have an additional treatment during the night. Let’s see if Mommy and Daddy can keep up with having a stranger in the house at night… They were not thrilled with that idea in the beginning… We’ll see how that goes.
NurseGlenna is going to Chicago for the weekend. Wish her a good trip! We’ll miss you! TherapistPat will also go travel, this one to Hawaii. Someday I will travel, to Disney and then back home to my beloved little island. Time runs so fast, that I know it will be soon enough. I miss Auntie and Sti and Maria and Granma and everyone else… I miss the beautiful sunrises and the quiet starry nights. I wish I could be home for Christmas… Soon enough. Wishes come true.
Thank you, God, for you have granted so many good things to me! I am unique and precious, and so much love is always around me! Thank you for you open doors when there seems no hope and no way out… Thank you for protecting Mommy and Daddy, for the courage you give them to face every day with a smile and belief that things WILL get better. Thank you, God, for helping so many kids out there that have been in the hospital and have been in need of Your healing touch! Bless so many families that need hope with Your presence, keep granting so many small miracles that make such a big difference!
Amen.
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